I am a diabetic, and have been for two decades. I always knew that I would be, mostly because of my family medical history. My Father, his mother, and his father all had diabetes. It killed every one of them before they were 64 years old. I often joke that I lost the genetic lottery. My grandfather died when he was 47 years old. My grandmother, when she was 63- after having to live without legs for two years. My father died at 62. When I was diagnosed with diabetes, I lived in fear that I too would be dead before I could collect Social Security.
About 4 years ago, the diabetic medicines that I was on stopped being effective, and my A1C climbed to 10.0. This is a part of the disease- diabetes is a progressive disease. My doctor wanted to put me on Insulin, but knowing just how fragile diabetics become when they go on Insulin, I wanted other options. I see the story every day- insulin dependent diabetics inevitably go down the same road, ending in amputations, kidney failure, and death. Having to be on Insulin is a death sentence. I wasn’t going to do it.
That’s when the new class of diabetic medicines came along, and they were a miracle drug. Once I began taking Mounjaro, my A1C dropped to the mid 6’s, and my blood sugar is now well controlled. For the first time, I began thinking that I might actually make it to my 70’s. My last A1C was 6.2.
Since I could prove that I had been on Metformin and Actos for more than a decade, my insurance was willing to cover the $3,000 per month charge for the medicine. Insurance companies hate these new drugs- that’s why they got the Biden administration to go on a rampage to lower the cost of Insulin- they needed a cheaper alternative to the new medications.
Then two years ago, I got a new job. A new job means new insurance. The hospital that I work for, who is also my insurance company, requires you to get all of your medicine from the company’s pharmacy. That pharmacy has done everything that they can to force me to switch from the more expensive drug and take insulin. They delay filling my prescriptions, and say that they don’t have any, but if I would only switch to insulin, they have plenty of that available. I refused, and kept forcing them to pay for the drugs. As long as my doctor says that this drug is medically necessary, the insurance has to pay for it.
So this month, two months after the open enrollment period ended, my insurance company informed me that they will no longer pay for me to see any doctor who isn’t employed by the company that owns the hospital, and not coincidentally, the pharmacy. Not only that, but they are prohibiting me from paying out of pocket to see my current doctor. That was confirmed by my doctor this morning. They were threatened with legal action if they continued to see me for cash while I have active insurance. All of my future doctor’s appointments were cancelled. I offered to pay cash, and my doctor’s office told me that they can’t let me do that as long as I have active insurance. Now I am forced to see a company doctor, who will immediately place me on insulin.
I have a three month supply of medication left, and will be out of it by April 28. I can be added to my wife’s insurance during her open enrollment period, but that isn’t until July 1. It looks like they are going to force me to become Insulin dependent. I am sitting here thinking that my employer would rather kill me than pay for my medicine.
The only way to be added to my wife’s insurance earlier is to get a new job, and it has to be involuntary. I have to find a new job, then find a way to get fired, and I have to do it within the next three months. Maybe I can ask my boss to do me a favor and fire me.
My only other option is to try to convince a compounding pharmacy to sell me some generic, but you have to be obese for that to be legal, and I am not fat enough for that.
I am screwed.
9 Comments
Will · February 7, 2025 at 6:27 am
Are you Type 1? I am Type 2 and I have gotten my meds down to just Glipizide with diet and exercise. The diet is very strict but better than expensive meds and I am losing some weight. My last A1C was 5.9.
Divemedic · February 7, 2025 at 8:13 am
That works for awhile, until it doesn’t. My diabetes was controlled for 7 years with diet and exercise. Then my A1c climbed, so they added metformin. That worked for a couple of years, then we needed to add Actos. Then Trulicity. Now Mounjaro.
The Mounjaro has eliminated the Actos and Trulicity. Still, they will eventually have to up my dosage on it to keep it working. For now, it’s worked for the past 2 years.
Diabetes is a progressive disease. Once you have it, you always have it.
GreenCross4Safety · February 7, 2025 at 6:42 am
Damn, that royally sucks. I know if anybody can figure out a way forward, it will be you.
Boneman · February 7, 2025 at 7:10 am
That’s downright Communistic… Had a friend, utterly uninsured (self employed, curmudgeon, utterly mistrustful of Dr’s, etc.) that was in dire need of cataract surgery. As it happened, it was only during a frustrated in-office “conversation” with a receptionist about it that the doctor happened to overhear that HE (the PATIENT) was willing to pay CASH to have it done and “Man to Man” they worked out a deal. Otherwise, it was seemingly IMPOSSIBLE for him to get it done.
I wouldn’t doubt they may have broken a rule or two getting it done. This was after all in the People’s Republic of New Jersey even…
Doesn’t sound like that would be an “option” for you… and aside from literally buying your stuff on the street… if it were even available, I’m not sure how you could manage.
As to getting yourself involuntarily terminated, how about possibly bringing your situation to a couple of news outlets and EXPOSING these miscreants. That might get you shown the door.
Something alluding to “Saving MONEY not LIVES” would make a good bi-line for an Op Ed piece (you could almost copy and paste your posting here) to the local New “Paper”.
Just reading about this is infuriating ME… my Mom is diabetic and of course now insulin dependent a number of years. This has me thinking if that was even necessary. She is 84 and beginning to struggle.
Wishing you the best of luck in finding a solution and am truly feeling badly that you or anyone for that matter finds themselves in THIS kind of a situation.
Keep us posted.
Archie's Bunker · February 7, 2025 at 7:52 am
Down to a lean 200lbs. at just over six feet, off all insulin for five years.
High blood pressure will be what takes me out.
The diastolic number was 276 when I stroked out in December and it has roasted my kidneys.
Joe Blow · February 7, 2025 at 7:55 am
That sucks brother. You and I don’t always see eye to eye, but you have my sympathy here. I hope it turns out the best for you.
That being said, get a new job. I know, that’s an easy statement to make, hard to live with. My wife was faced w/ the choice over the clot shot. I told her quit, find a new job, new career, don’t care, it’s NOT WORTH IT. We’ll get by, we’ll figure it out, even if it means lowering our standard of living, we’ll figure it out. The clotshot is forever, money and status is temporary at best.
She ended up getting 2 phizer plugs, but none of the boosters, b/c she regretted taking the first ones. I have no doubt this will rear its head in the future, but so far God has been good to us.
You know better than me, once on, you will not come off insulin. Find another way around. There are always options, many unpalatable, agreed, but you are never forced to do something. You are presented choices from bad to worse. If you truly feel insulin will be the step that begins the spiral around the bowl, do not take it. It really is that simple. Find another way, anyway, somehow.
Businesses do not care about people, it’s anathema to their function (increase shareholder value). Your corporate employer doesn’t care if you live or die, you know that. They don’t care if you’re sick or healthy, you know that. They only care about their bottom line, you know that.
Deal with it. Sell your brand new house and find a new job if need be. Yeah, that would suck, I know. But so would having your legs amputated. That’s forever, the new house is temporary at best. You can buy a new brand-new house some day if thats what makes you happy. Can never go for a swim in the ocean again if you don’t have any legs. Think long-term here. You made sacrifices early in life so you could achieve your professional goals, same-same.
Best of luck to you Brother!
Anonymous · February 7, 2025 at 8:52 am
Have you tried going on a cruise and stocking up when visiting ports? That is how my friends get certain medicines they need.
Divemedic · February 7, 2025 at 8:59 am
Mounjaro isn’t available outside of the US that I can find.
SiG · February 7, 2025 at 9:14 am
That’s one of the most horrific stories I’ve ever read. Something like Boneman’s comment about taking it to a newspaper might help or get you fired which also might help.
There’s type 2 diabetes in my family but nowhere near as serious the way you describe it. No one had amputations, but I remember my grandfather on mom’s side injecting insulin to start his day on a visit to our house when I must have been 10. My mom had it and my brother has his in control with a keto diet and one medication. He was on insulin until he went keto and lost 50 or 60 pounds. I was “prediabetic” but have not progressed beyond that with the keto diet and exercise.
I’ve heard about some foods being found to have GLP-1 agonist properties that might bear looking into. The only one I can recall at the moment is a pentose called allulose that has become popular lately simply for its superior properties in cooking over the sugar alcohols pretty and much all of the common sugar replacements (sucralose, stevia, and so on). I’m not aware of amounts required, so eating some outrageous amount of allulose or some other food to get the effects might not be possible.