Acuity

After an evaluation of his lab results, the hospital felt comfortable moving him out of the ICU. He has been moved to a normal pediatric unit. He still cannot speak, eat, swallow, or move his upper extremities. He can only walk with large amounts of assistance. It’s tough to watch. The only way that he can communicate is by looking at something and laughing or crying. Things like “Which movie do you want to watch?” Then holding them up one at a time until he laughs at one.

Still, a week ago he was still unconscious, and ten days ago he was near death. Even if improvement doesn’t come as quickly as we would like, it is still coming. Sometimes it’s difficult to remember that. Still, at this point it is impossible to know what long term deficits he will have, if any. You can tell that being unable to do anything is wearing on him, and he gets visibly frustrated at times.

But progress is slow. I won’t do updates unless and until there is something to report.

On another front, his school contacted my daughter and asked for a doctor’s note for this extended absence. So it was provided to them. The next thing was the school telling her that he would have to disenroll or transfer to Florida virtual school. That is complete and utter horseshit. Federal and Florida law require them to offer him services. The law says that he is entitled to home education visits while in the hospital, and having spent time as a teacher, I know what the law says. We are going to go through the process, and if the services required by law aren’t provided, I will gladly hire an attorney.