A lot has happened with Rion since I last updated his story. He was moved from the ICU to the regular floor on Nov 9. He finally was able to start eating baby food the same day. On November 10, he was able to take a wheelchair ride and go outside for the first time in a month.
His physical therapy has been going well, and he has been making significant progress. Therapy began by putting a maraca on one ankle and jingle bells on the other, then had him laughing as he was able to “play music” with his feet. They eventually got him to the point where he was able to ride a large tricycle around the hallways of the hospital. Soon, he was walking up and down a small set of stairs with assistance. He was also able to use his hands to grip things. On the 15th, he did so well that he was able to use his wheelchair as a walker to walk from PT to his room. He doesn’t walk well, but he is getting stronger and better coordinated every day.
They pulled out his feeding tube and transferred him by ambulance to a children’s inpatient therapy center, where he will get more intense physical therapy than he was getting in the hospital.
He still cannot talk, but the progress that he has made in the past 17 days is truly remarkable. This morning, he actually was able to eat his first solid food since October 10. In case you are wondering, it was his favorite food- french fries.
I want to thank all of you for the prayers and well wishes, and want to thank everyone who donated to the GoFundMe page. All of it has been a huge help.