I have hesitated to post this until now. My daughter has two children, a daughter aged 7, and a son aged 6. Her man has two children of his own from a previous marriage. So I have a total of four grandkids. This post is about my daughter’s six year old son.
Last Wednesday, he came home from school complaining that he was tired. It had been a long few days, as all of them play sports, and the weekend had been filled with tons of activity. He went to bed early. He wouldn’t wake up fully on Thursday morning. He was running a slight fever, and was refusing to eat or take any fluids. He will occasionally open his eyes, but he hasn’t spoken a word since he complained of being tired on Wednesday.
By Friday, my daughter called me in a panic because she couldn’t understand why he was getting sicker. I told her to try and get him to take fluids. She tried, but every time he would drink, he would vomit them back up. So Friday evening, she took him to the Pediatric ED. This next part is for the medical people: His ABG showed pH of 7.28, a CO2 of 47, and an HCO3 of 11. He is on contact and droplet precautions because he tested positive for Rhino and Enterovirus.
So he got fluids. I thought for sure that the fluids would bring him around. No go. When he is sleeping, he writhes in pain, but that is the only reaction. He is rousable, and could walk with assistance to the restroom, but if not woken up, and coerced into going, he will simply wet himself while unconscious. Light hurts his eyes, and he will wince in pain when the lights are turned on. His fever on Friday night spiked to 103. So as soon as I got back from Miami on Saturday, I went to see him and my daughter.
When I saw him, I attempted to check his Brudzinski, so I placed him supine, placed one hand on his chest, and raised his chin to his chest, which caused his hips and knees to flex. I reported this to his nurse. My daughter reports that they went in later and woke up my grandson. They had him put his own hand on his chest and use his other hand to raise his own head. There was no response. I have never heard of a Brudzinsky being done that way, but I may be wrong.
While I was there, he opened his eyes, and I got him to smile because I was being a big goofball. My daughter reports as soon as I left, he went back to sleep and is even more difficult to rouse.
Anyhow, he has had numerous blood draws, head CT, EEG, and Lumbar puncture, all normal. The only abnormal finding on any testing is a small cyst on his spinal cord, but the neurologist thinks it may have been there since birth and says it wouldn’t be the cause of all of this.
Then this morning, he deteriorated again. Now he can’t even walk with assistance. So now he has been moved to the Pediatric ICU. He is on pain meds, so he is sleeping better, but there are still no answers. If they can’t get him to take anything by mouth by tomorrow, they are going to insert an NG tube and begin feeding through it.
As you can imagine, my daughter is a wreck. She hasn’t left his side in a week. When they take him off for more testing, she spends her time crying. My little girl’s heart is breaking, and I don’t know what else I can do. As soon as I am done typing this, I will be headed off to the hospital to see them again. The hospital is over an hour from here, so I will be home late.
Life is what happens to you while you are busy making other plans.
John F · October 17, 2022 at 1:33 pm
Prayers for your Grandson and you and your family.
Anonymous · October 17, 2022 at 2:01 pm
Christ’s mercy be with your grandson, his medical team, your daughter, and you. I’ve asked Him to heal the child.
Anonymous · October 19, 2022 at 6:03 pm
I am in agreement with you.
Exile1981 · October 17, 2022 at 2:08 pm
Not being a medical type i have no advice but if your ok with it I will pray for him.
Ed Hasell · October 17, 2022 at 2:35 pm
My prayers for your Grandson and your family.
Tim Smith · October 17, 2022 at 3:06 pm
So sorry for your family’s suffering. This is very hard on you too, I am sure. Praying for you all.
Jen · October 17, 2022 at 3:12 pm
I’m so sorry!
Prayers for your family.
Any chance of meningitis?
Divemedic · October 17, 2022 at 3:36 pm
That’s what I think. The doctors aren’t saying
AL in ocklawaha · October 17, 2022 at 3:44 pm
Oh No! Sending prayers for you all.
Bad Dancer · October 17, 2022 at 3:54 pm
Praying for you an yours
Brad Riordan · October 17, 2022 at 4:09 pm
I am sorry for your troubles , Please accept my prayers for you and your family.
John h · October 17, 2022 at 4:11 pm
Its all the classic symptoms plus a few which isnt unusual. Call an independant specialist. Not pd by a pharm company if u can find one.
John h. Tower service
Big Ruckus D · October 17, 2022 at 4:26 pm
DM, I just saw this after being on the job all day. It pains me terribly to hear of a child suffering like this, and I hope to God he will make a recovery. Both for his own sake and that of his (your) family. Reading the recounting of symptoms, I was left thinking it sounded like meningitis as well, so I pray it isn’t bacterial.
Daniel K Day · October 17, 2022 at 4:34 pm
Prayers on the way. NMRK
ScottTN · October 17, 2022 at 4:42 pm
Praying for you all.
Chipmunk · October 17, 2022 at 5:04 pm
Praying for his recovery and for your family.
Anonymous · October 17, 2022 at 5:47 pm
Wow. So sorry to hear. I pray he recovers.
DBM · October 17, 2022 at 6:05 pm
Praying for your grandson, and your family as you deal with this.
Guy · October 17, 2022 at 6:23 pm
My family’s prayers go out to you. May God protect your grandson
Cherie Rodriguez · October 17, 2022 at 6:26 pm
I will pray for your daughter and grandson.
JP · October 17, 2022 at 6:27 pm
That’s just heartbreaking… Prayers for the little one, and for you all. I hope his physicians get a handle on things, right quick.
BobF · October 17, 2022 at 6:33 pm
No worse pain than that of an innocent, and in this all are innocents. Sincerely hoping for a positive outcome.
Miguel GFZ · October 17, 2022 at 6:34 pm
May the Lord bless him and protect him
TNfltsafetyguy · October 17, 2022 at 6:39 pm
OMG! Real sorry to hear of this incredible stress on you and your daughter, to say nothing of your grandson himself. I’m not med-qualified, just CERT/1st Responder, but I’m truly praying for an accurate diagnosis and a corresponding speedy recovery for the boy…
God please send quick relief and healing to DM’s grandson…Amen
Craig · October 17, 2022 at 7:29 pm
Praying for your grandson and family.
Matthew W · October 17, 2022 at 7:34 pm
Man, that really puts everything else into perspective.
Mike M · October 17, 2022 at 7:54 pm
Prayers up for your Grandson, daughter and family.
Noveskes Rock · October 17, 2022 at 8:04 pm
Tom from East Tennessee · October 17, 2022 at 8:54 pm
Likewise, prayers sent.
Anonymous · October 17, 2022 at 8:19 pm
Offering my prayers for your grandson, and for his mother and your family. This must be terrible, and I pray in faith for a complete healing and recovery.
It's just Boris · October 17, 2022 at 8:54 pm
Words are inadequate. But prayers for your grandson and family.
Cowboy · October 17, 2022 at 11:00 pm
Prays for your grandson and your family good sir.
Anonymous · October 18, 2022 at 4:25 am
So sorry to hear this. Prayers for all.
Joe Blow · October 18, 2022 at 4:39 am
God bless you and hold your family near good Brother. I cannot imagine what you’regoing through…
My father passed recently. 84 years young, had a good run. Has me all tore up. He was 84.
Karl Ushanka · October 18, 2022 at 6:20 am
How horrible. Hoping for the best.
StBenardnot · October 18, 2022 at 7:28 am
Prayers for you & yours.
Peter Grant · October 18, 2022 at 8:57 am
Prayers, crossing fingers, and tying knots in what I can’t cross. Please keep us informed.
Zarba · October 18, 2022 at 9:12 am
We will pray for your grandson’s healing and for your family to find peace.
Michael in nowhereland · October 18, 2022 at 9:15 am
Praying for your grandson and all of you
Anonymous · October 18, 2022 at 9:49 am
Pediatric neurologist here. This sounds like a viral meningoencephalitis. CSF studies are frequently unimpressive and the only abnormality being maybe an increased protein. Would cover with antibiotics and acyclovir until cultures/PCR come back negative. Of course, antibiotics don’t do anything for viruses and acyclovir only works on HSV but better safe than sorry. Would get an MRI w/wo contrast and consult Infectious Diseases. Low threshold for f/u CT head and EEG going forward. Fortunately, these things almost always pass with a complete recovery.
Divemedic · October 18, 2022 at 1:35 pm
I thought the same. He continues to deteriorate. He was having seizures last night. We are headed to visit the hospital in a little bit. Thanks for the opinion.
D · October 18, 2022 at 10:45 am
You and your family are in my thoughts and prayers.
CelticGirl424 · October 18, 2022 at 11:16 am
My heart is breaking for all of you. 😢
Southernborne · October 18, 2022 at 12:30 pm
May the Lord bless your Grandson and you and your family. Ephesians 6:10-18
Rob · October 18, 2022 at 1:16 pm
I pray for your grandson and your family, and I ask God to place His Healing Hands on your grandson. Jesus, please help DM’s family.
Floid · October 18, 2022 at 1:21 pm
Prayers to your grandson, to you and all of your family. May God’s healing hand be at work.
Red · October 18, 2022 at 1:33 pm
DM~ Was your grandson jabbed recently with any combination of the childhood jabs? Anything new added into the mix? Have the Docs checked all vitamin, mineral and amino acid levels?
In God’s Safekeeping
Carlos The Jackal · October 18, 2022 at 2:59 pm
Shit like this shouldn’t happen to little kids.
nunya · October 18, 2022 at 4:53 pm
keeping you and yours in my heart
J. Smith · October 18, 2022 at 8:25 pm
Sayin a prayer DM
dave in pa. · October 19, 2022 at 2:12 am
that sucks. praying for you all here. breaks a person’s heart to hear about
things like this.
Red · October 19, 2022 at 10:23 am
Are there other cases of this disease in the area?
JJ · October 19, 2022 at 11:20 am
Prayers lifted up for healing.
James · October 19, 2022 at 12:00 pm
Best wishes for a speedy recovery of your grandson.
Phil · October 19, 2022 at 5:42 pm
I will be saying some extra prayers for you and your family D.M.
This is just heart breaking.
Steve the Engineer · October 19, 2022 at 6:34 pm
OK he’s in my prayer list now, the list keeps getting longer . .
Jeffery in Alabama · October 19, 2022 at 7:06 pm
I’ll be praying for ya’ll Divermedic.
Grog · October 19, 2022 at 7:07 pm
Prayers sent up.
RosalindJ · October 19, 2022 at 9:07 pm
Prayers up for all of you.
Red · October 19, 2022 at 9:39 pm
Is it possible your Grandson was bit by a Tick or some other critter?
A Parasitic infection?
Deathray · October 19, 2022 at 10:25 pm
Praying for all of you that you get a diagnosis, healing, & peace.
STxAR · October 19, 2022 at 11:07 pm
Praying for the young man, your family and you. I can’t even…
Grumpy · October 19, 2022 at 11:19 pm
What a nightmare! All I can say is courage and prayer is about the only thing left. Use them!
James Archer · October 20, 2022 at 12:48 am
So sorry, prayers and best wishes.
Mark · October 20, 2022 at 5:35 am
MY PRAYERS SENT- BLESS YOUR FAMILY.
A · October 20, 2022 at 6:02 am
I prayed for your Grandson and yourself. With your knowledge, keep looking for answers on your own including new Dr’s. You might check here for second opinions: https://www.texaschildneurology.com/
I do wish you my best and thank you for your blog.
Bear Claw · October 20, 2022 at 7:21 am
Prayers for your grandson and all your family
Chuckyman · October 20, 2022 at 3:41 pm
Prayers for you all and most especially for the boy.
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