Went to see the grandson today. Right after I got there, the Infectious Disease Doctor and Physical Therapy showed up. Things were a good bit better today.
When I got there, he was writhing in pain and crying. I saw that he was flat on his back, so we raised the head of the bed. The crying stopped. I played with him for awhile (piggies, fart jokes, silly child games that 6 year olds find funny). He made the first sounds other than crying that anyone has heard from him in 9 days. He laughed. It was the greatest sound in the world.
Then the ID doctor showed up with physical therapy. They got him out of bed, and he took his first steps in 8 days. They were awkward, assisted by the PT people, but they were steps. 4 of them. He needs a little help holding up his own head, he barely moves his arms, and it will be weeks or even months before he walks again without assistance, but it is progress.
It doesn’t look like he will have permanent, full paralysis. He may or may not have permanent weakness, but only time will tell. For a child who was on his deathbed seven days days ago, this is nothing short of a miracle.
The culprit, according to the ID doctor? An infection by enterovirus that somehow infected his brain and caused massive amounts of swelling. In other words, viral meningitis.
He is still in the ICU, and we continue to wait and watch.