With regards to my grandson: I spent most of last night at the hospital. I got the opportunity to look over his labs, and they all looked as normal as any child’s. The doctors were performing every test imaginable. He now has a feeding tube, and has been having seizures off and on all day.
They believe that they have finally identified the culprit, and the news is not promising for full recovery. It looks like he has acute flaccid myelitis caused by his being infected with a strain of enterovirus called EV-D68. From what doctors can tell from examining him during the short periods of time that his eyes are open, it looks like his left arm is not working.
It appears like the virus has been hitting children in the US pretty hard for the past few weeks. There is no vaccine, and there is no real treatment. In my grandson’s case, permanent paralysis and even death are possible. If it is in fact determined that this is what he has, the best we can hope for is permanent paralysis of at least one of his limbs. What a tough thing for a six year old child. My heart breaks for my daughter.
For now, they are starting him on a course of corticosteroids, continuing the IV immunoglobulins, and they will be transferring him to UF Shands in Gainesville for more care. Transferring him to Shands is both a blessing and a curse. It’s a great hospital, but the fact that he needs to go there is not good news. It’s serious enough that the CEO of the hospital where he currently is has personally gotten involved with the case.
I can’t visit tonight, as the ICU only allows for three people to visit at a time, and one of them is of course my daughter, so the family is setting up visitation schedules.
For now, we await the results of the testing.